We are thrilled to share this open access ANJR paper on perspectives from the inaugural Bridging the Gap Conference.
Bridging the Gap Research Paper Published
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New Publication
Quality of Life paper published
We are thrilled to announce the publication of Spinal CSF Leak Foundation medical advisor Dr. Deborah Friedman’s study, “Quality of Life in Patients with Confirmed and Suspected Spinal CSF Leaks”—funded by your research donations.
After 18 years, a proper diagnosis—and treatment
A new publication features the remarkable case of a spinal CSF leak whose cause turned out to be a labor epidural from almost 18 years earlier.
Research Update: Your funding at work!
Research update: Dr. Deborah Friedman’s study, “Quality of Life in Patients with Confirmed and Suspected Spinal CSF Leaks,” has been accepted for publication by the journal Neurology.
New Study Published on Incidence of Spontaneous Intracranial Hypotension (SIH)
A newly published study is the first to provide incidence rates for spontaneous intracranial hypotension (SIH) in a defined population. The study, published in the journal Cephalalgia by authors Wouter Schievink, Marcel Maya, Franklin Moser, Paul Simon, and Miriam...
Spinal CSF leak featured in HeadWise magazine
The most recent issue of HeadWise magazine, a National Headache Foundation publication, features an article on spinal cerebrospinal fluid (CSF) leak written by Dr. Connie Deline, our co-founder. This disorder is an important under-diagnosed cause of daily...
10 Myths + Misperceptions
Spontaneous Intracranial Hypotension: 10 Myths and Misperceptions This 2018 publication by the team of neuroradiologists in the Department of Radiology at Duke University Medical Center reviews the body of literature on spontaneous intracranial hypotension and...
POTS, spinal CSF leak or BOTH?
Orthostatic headache, or headache that is worse when upright, is a key feature of intracranial hypotension due to spinal CSF leak, but is also a common feature in patients with postural orthostatic tachycardia syndrome (POTS). Getting the correct diagnosis is...
New Review Published by Duke Team
This is an excellent new review on the diagnosis and treatment of spontaneous intracranial hypotension from the team of neuroradiologists at Duke University. Update on the Diagnosis and Treatment of Spontaneous Intracranial Hypotension. Kranz PG, Malinzak MD, Amrhein...
Normal CSF Pressures Common in Spontaneous Intracranial Hypotension
Intracranial hypotension means low pressure inside the head. This refers to low cerebrospinal fluid (CSF) pressure, which results from the loss of CSF volume, almost always from a CSF leak at the level of the spine. However, normal cerebrospinal fluid (CSF) pressures...
Rare Disease Database Report Published by NORD
The National Organization of Rare Disorders (NORD) has a widely referenced library of more than 1,200 reports on rare disorders that provide important information written at a level suitable for patients and their families. NORD has recently released a new Rare...
New Study Provides Insight into Presence of Dural Enhancement on Brain MRI
This very recent publication by Peter Kranz, MD and his colleagues at Duke University in Durham, NC provides new insight into the presence or absence of dural enhancement on brain MRI in patients with spontaneous intracranial hypotension (SIH) secondary to...