Transcript Hi everyone. My name is Jeremy Marks, and I’m joining you from Scottsdale, Arizona. I wish I could be there talking about something way more glamorous – like exotic vacation destinations – instead of CSF leak surgical considerations, but...
Registration is now open for the 2nd annual “Spinal CSF Leak: Bridging the Gap” conference this November 2-3, 2024! Bridging the Gap is an annual conference, held in November at the University of Colorado Anschutz in Aurora, Colorado. This event aims to...
What is Chiari Malformation? Chiari Type 1 Malformation is a congenital structural defect in the base of the skull and cerebellum. The cerebellum is the part of the brain located behind the top of the brain stem, low at the back of the head. It has two small areas...
Happy Father’s Day from the Spinal CSF Leak Foundation! This Migraine and Headache Awareness Month, it’s important to know that spinal CSF leak and other headache diseases can affect anyone—including men. In these four stories, we hear from fathers...
We’re proud to announce that the Spinal CSF Leak Foundation’s international patient registry will be launching this fall! Growing a registry takes patience, with many steps from initial conception to implementation. And once it’s ready to launch, it...
Amalie shared her thoughts with us about how and why she’s participating in #duradash, and what she wants people to understand about spinal CSF leak. You can support her #duradash campaign here! About Amelie I’m a 28-year-old woman from Norway. On...