Registration for Bridging the Gap 2024 is now open!

Registration for Bridging the Gap 2024 is now open!

Registration is now open for the 2nd annual “Spinal CSF Leak: Bridging the Gap” conference this November 2-3, 2024! Bridging the Gap is an annual conference, held in November at the University of Colorado Anschutz in Aurora, Colorado. This event aims to...
Chiari Malformation Awareness Month

Chiari Malformation Awareness Month

  What is Chiari Malformation? Chiari Type 1 Malformation is a congenital structural defect in the base of the skull and cerebellum. The cerebellum is the part of the brain located behind the top of the brain stem, low at the back of the head. It has two small areas...
Father’s Day: Men and Spinal CSF Leak

Father’s Day: Men and Spinal CSF Leak

Happy Father’s Day from the Spinal CSF Leak Foundation! This Migraine and Headache Awareness Month, it’s important to know that spinal CSF leak and other headache diseases can affect anyone—including men.     In these four stories, we hear from fathers...
COMING SOON: ileak registry℠

COMING SOON: ileak registry℠

We’re proud to announce that the Spinal CSF Leak Foundation’s international patient registry will be launching this fall! Growing a registry takes patience, with many steps from initial conception to implementation. And once it’s ready to launch, it...
Duradash® 2024 Spotlight: Amalie

Duradash® 2024 Spotlight: Amalie

Amalie shared her thoughts with us about how and why she’s participating in #duradash, and what she wants people to understand about spinal CSF leak. You can support her #duradash campaign here!         About Amelie  I’m a 28-year-old woman from Norway. On...