A decade-long search for answers: Hailey’s spinal CSF leak story
It’s not uncommon for patients to suffer delays in finding a proper diagnosis and effective treatment for spontaneous intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak. For Hailey and her family, however, it took ten years. This is her story....
LeakWeek2022: FACT vs FICTION
Today is the start of #leakweek2022! All throughout the week, in partnership with Spinal CSF Leak Canada and the CSF Leak Association, we’ll be sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge, and share with family and friends who may not...
#duradash2022 spotlight: Team (Un)bearable
Cosmo and Team (Un)bearable shared their thoughts with us about how they plan to participate in #duradash2022 for today’s #duradash spotlight Visit the Team (Un)bearable page to see updates on their progress and give your support! (Un)bearable is a spinal CSF...
National Migraine and Headache Awareness Month
June is National Migraine and Headache Awareness Month Throughout National Migraine and Headache Awareness Month, the headache, migraine, and cluster community aims to address this year’s theme of “Advocate for Access” by focusing on removing barriers to therapies and...
#duradash2022 spotlight: Bridget Janney
Bridget Janey shared her thoughts with us about how she plans to participate in #duradash2022. Visit Bridget’s team page to see updates on her progress and give your support! About bridget I’m 40 now, and was 39 when my spinal CSF leak started. My leak was...
Patient Stories
