Spinal CSF Leak and Dysautonomia
Dysautonomia awareness month October is Dysautonomia Awareness Month. Dysautonomia (from “dys-,” meaning bad or difficult, and “autonomic,” meaning occurring involuntarily or automatically) is the name for range of conditions that affect the...
International Ataxia Awareness Day
September 25 is International Ataxia Awareness Day. Ataxia, a degenerative neurological disorder that affects movement and coordination, can be a rare symptom of intracranial hypotension due to spinal CSF leak. Ataxia literally means “without...
World FTD Awareness Week
This week is World FTD Awareness Week. FTD, also known as frontotemporal dementia, frontotemporal lobar degeneration (FTLD), or Pick’s disease, is a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain. It is the most...
Patient Stories: Anna
Anna’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak is often confused with other diagnoses. Like so many patients, Anna was told her symptoms were due to sinus infection or migraine. Here is her story. A gradual beginning How old were you when...
Share your voice
Make your voice heard at our “Bridging the Gap” conference! Share your voice! Coming up Saturday, November 11, Spinal CSF Leak Foundation and the University of Colorado Anschutz Medical Campus are presenting a one-day symposium titled “Spinal CSF...
Patient Stories
