This week we revisited three of our patient storytellers sharing their experiences with spinal CSF leak being misdiagnosed as migraine. Alex suffered for almost four years before learning his diagnosis was spinal CSF leak, due to a dural tear caused by a bone spur. Aiza was treated for migraine for five years before she was correctly diagnosed with and successfully treated for spinal CSF leak. Casey had lived with migraine for a decade, so he knew his unusual head pain was not a migraine, but he still was given migraine treatment before his diagnosis of spinal CSF leak was finally made. Migraine is the most common misdiagnosis among patients with spontaneous intracranial hypotension (SIH), but an important hallmark of SIH is that migraine treatments are almost entirely ineffective. You may find more information about this and other common misdiagnoses here, in our article, “Let’s Make Misdiagnosis the Exception.”