Make your voice heard at our “Bridging the Gap” conference!

Share your voice! Coming up Saturday, November 11, Spinal CSF Leak Foundation and the University of Colorado Anschutz Medical Campus are presenting a one-day symposium titled “Spinal CSF Leak: Bridging the Gap Between Patients and Providers.” 

For part of this event, we are looking to compile a collection of videos (or audio recordings, or even text comments) from people with spinal CSF leak speaking about their experience on a variety of topics, including:

• Getting a diagnosis
• What it’s like to have a leak with “normal” imaging
• What it’s like to have an epidural blood patch
• What it’s like to have surgery
• What it’s like to have rebound high pressure
• What no one tells you about “recovery”
• What no one tells you about living with a chronic leak
• What you wish doctors knew about spinal CSF leak
• ….and anything else you’d like to share that’s important to you as a person affected by spinal CSF leak!

We’d love to have you share your voice!

How to participate

AUDIO: Please record yourself using your phone’s voice memo or other audio app. You may share audio recordings of yourself talking about more than one topic, but please try to keep each one under one minute long. If you have photos to share along with your audio recording, you can share those, too. When you’re ready to share, please use the following form:

SHARE YOUR AUDIO

NEED HELP? If you’d like to share video comments but need some help recording, or if you have any other questions, email us at staff@spinalcsfleak.org.

Deadline for submissions

No matter how you choose to share your thoughts with us, please send them in by OCTOBER 13, 2023, at the very latest!

Want to share with a friend who might want to join in?

Just send them a link to this page, or any of the individual form links:

bit.ly/share-your-video

bit.ly/share-your-audio

bit.ly/share-your-comments