As part of Mental Health Awareness Month in North America and Mental Health Awareness Week in the UK, the Spinal CSF Leak Foundation, Spinal CSF Leak Canada, and the CSF Leak Association are partnering together to invite you to help us raise awareness about the mental health impacts of spinal CSF leak by making the invisible visible.
Show us life from your perspective
#TheViewFromHere aims to illustrate and share what life is like with a spinal CSF leak from the point of view of those who live with one. We’re inviting anyone who would like to participate to join in by using your phone to take a photo of what you see where you are right now, wherever you are in your journey. This could be a photo of the ceiling of your bedroom, or what you see when you lie flat waiting for an appointment, or something you see that makes you smile or offers comfort or solace to you during difficult times—literally anything from your particular point of view. The point is to capture YOUR experience and share what YOU see as a person with a spinal CSF leak.
How to participate
There are two ways you can participate in #theviewfromhere:
- One, you can post your photos online on your social media accounts with the hashtag #theviewfromhere and tag us in your posts.
- Two, if you prefer, you can submit your photos to us here, with a brief caption or explanation of what it is or what it represents to you, and we will share it on our social media pages and websites to help raise awareness about life with spinal CSF leak.
All three organizations will be sharing and highlighting these photos as a way to strengthen our community, provide solace and strength, and show the world what it looks like through the eyes of someone with a spinal CSF leak.