Patient Voices GivingTuesday 2021: Michell

November 24, 2021News

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Life with a spinal CSF leak

This GivingTuesday, the Spinal CSF Leak Foundation is raising money for a groundbreaking new study on quality of life in people with spinal CSF leak. Recently, we invited people with spinal CSF leak to share their thoughts about the disabling nature of the disorder and how it affects their quality of life. Here’s what Michell had to say about her experience.

Featuring patient voices this GivingTuesday. An image of a patient quote about quality of life that reads: "My children have had to adapt to a life where mom sometimes can barely get out of bed for days, weeks, or months at a time. My illness has upended not only my life, but the lives of my husband and children as well." The image links to a youtube video

How you can help

There are several ways you can support us this November 30, on GivingTuesday, as we raise funds for an important new study on the quality of life in people with spinal CSF leak.

give via facebook

A donate button linking to our facebook givingtuesday fundraiser

give via the foundation

A donate button linking to our foundation givingtuesday campaign

Thanks for making a measurable difference in the lives of people with spinal CSF leak!

Further reading:

GivingTuesday 2021
Patient Voices GivingTuesday 2021: Kellye
Patient Voices GivingTuesday 2021: Shana