LeakWeek 2023 Day Two: Symptoms

LeakWeek 2023 Day Two: Symptoms

Jun 5, 2023 | News

LeakWeek Day Two: Symptoms     The most common symptom: Positional head pain The most common and classic symptom indicating a spinal CSF leak is a type of head pain that is related to posture or position, called “orthostatic” (from the Greek orthos, meaning...
Brain Awareness Week 2021: Head Pain and Spinal CSF Leak

Brain Awareness Week 2021: Head Pain and Spinal CSF Leak

Mar 15, 2021 | Commentary, News

Each day this week, we’ll be discussing some of the neurological symptoms and complications related to spinal cerebrospinal fluid (CSF) leak. Up first, by far the most common symptom (though not seen in every patient): Headache. The loss of CSF volume due to a leak...
Emily did not have a pituitary tumor

Emily did not have a pituitary tumor

Oct 18, 2019 | News, Patient Stories

Emily’s brain MRI led her doctors to think she had a pituitary tumor. Instead, what she really had was a spinal CSF leak. Emily was a couple weeks into a one-month trial of Cross-Fit when the headaches started. Driving home after a workout, she found herself...

Aiza’s headache story

Oct 4, 2019 | News, Patient Stories

Aiza’s spinal CSF leak was misdiagnosed for five years. Under the guidance of her doctor, she began trying every possible migraine medication, but nothing worked—because Aiza did not have a migraine headache. What she had was spontaneous intracranial hypotension due...
Headache Neurology Perspective at #SIH2018

Headache Neurology Perspective at #SIH2018

Nov 12, 2018 | News

  We were thrilled to have three top headache neurologists as speakers at the Intracranial Hypotension Symposium on October 13, 2018 in Marina del Rey, CA. The symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation. These 3 experts...
Dr. Schievink’s Approach after 1111 Patients

Dr. Schievink’s Approach after 1111 Patients

Nov 7, 2018 | News

  We were delighted to see Dr. Wouter Schievink share his updated approach to the care of patients with intracranial hypotension after the 1st 1111 patients at the Intracranial Hypotension Symposium on October 13, 2018 in Marina del Rey, CA. He kindly agreed to...