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Patient talk: Physical and emotional wellbeing while living with a spinal CSF leak — Leah Leavitt

Patient talk: Physical and emotional wellbeing while living with a spinal CSF leak — Leah Leavitt

Jan 28, 2025 | Conference Video

Transcript On August 4th, 2013, I woke up to my body in total chaos – a crippling headache, vertigo, ringing ears, and uncontrollable vomiting. It was terrifying to feel my body go completely haywire, as if it had turned against me overnight. I could not...
Physician talk: Overlapping syndromes in Spinal CSF Leak — Dr. Ilene Ruhoy

Physician talk: Overlapping syndromes in Spinal CSF Leak — Dr. Ilene Ruhoy

Jan 28, 2025 | Conference Video

Slides Download the Slides Transcript Good morning. I’m really honored to be here. Thank you so much for inviting me. I was given two talks, so I’m speaking also tomorrow, and I tried to come up with how best to start the conversation about other potential...
Patient talk: Mental health and the emotional toll of missed and mis-diagnosis — Dr. John Reiman

Patient talk: Mental health and the emotional toll of missed and mis-diagnosis — Dr. John Reiman

Jan 28, 2025 | Conference Video

Slides Download the Slides Transcript Good to be here again, and I appreciate being invited. I want to begin a talk on patient experiences of missed and misdiagnosis by first extending gratitude to physicians who, by their expertise, commitment, diligence, and...
Spinal CSF Leak Foundation 10 year anniversary: The Foundation through the years

Spinal CSF Leak Foundation 10 year anniversary: The Foundation through the years

Jan 28, 2025 | Conference Video

Transcript For those of you that don’t know me, I’m a physician, now retired from clinical practice, who has some experience from the other side of the bed rail as a patient with SIH. I was invited to share a few comments about the history of the...
Patient talk: The evolution of patient advocacy in spinal CSF leak — Linda Pohuski

Patient talk: The evolution of patient advocacy in spinal CSF leak — Linda Pohuski

Jan 28, 2025 | Conference Video

Transcript Good afternoon. I would like to thank Dr. Callen, the University of Colorado, and the Spinal CSF Leak Foundation for this wonderful conference and the opportunity to speak to you today. Awareness and advocacy have been a big part of my spinal CSF leak...
Patient talk: Caregiving in the context of spinal CSF leak — Darren Jackson

Patient talk: Caregiving in the context of spinal CSF leak — Darren Jackson

Jan 28, 2025 | Conference Video

Transcript Today I’m going to talk to you about caregiving in the context of CSF leak, but I’m going to be brutally honest. This talk is going to be hard for me. It’s likely to get emotional, but that’s okay. We’ll all suffer through this...
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