Resource Documents

Downloadable Information and Brochures

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Download this overview document to share with your family and friends, or your physicians: Learn About Intracranial Hypotension

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This trifold brochure can be printed for awareness events: Spinal CSF Leak Foundation Trifold Brochure

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This informative collection of “Fact or Fiction?” cards, created in collaboration with Spinal CSF Leak Canada and the CSF Leak Association, can be downloaded and printed for sharing: Spinal CSF Leak Fact or Fiction?

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This fact sheet can be printed and shared to help raise awareness: Spinal CSF Leak Fact Sheet

Articles about Spinal CSF Leak

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The NORD Rare Disease Database entry on spontaneous intracranial hypotension, updated in May 2024, is a good resource for newly diagnosed patients

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HeadWise magazine, a quarterly publication from the National Headache Foundation, featured an article on spinal CSF leaks written by Dr. Connie Deline (September 2018):
Spinal Cerebrospinal Fluid Leak: An Under-recognized Cause of Headache

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The Mayo Clinic Rochester has a brief article for medical professionals: Complexities of low CSF volume headache

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This overview of spinal CSF leaks, written with our online support community partner, Inspire.com, is a good introduction for patients: A patient’s guide to spinal CSF leaks: Symptoms, causes & treatments

Accommodations Card

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This Wallet Card can be printed to help with being allowed to lay flat when needed: Medical Accommodations Wallet Card