Opening remarks: Dr. Andrew Callen opened our inaugural Bridging the Gap conference with a welcome that was also a stirring call to action.
Opening Remarks: Dr. Andrew Callen
read more
Updates from the Spinal CSF Leak Foundation
National Family Caregivers Month
November is National Family Caregivers Month. Many people with spinal CSF leak rely on family members and caregivers for help with daily life.
Quality of Life paper published
We are thrilled to announce the publication of Spinal CSF Leak Foundation medical advisor Dr. Deborah Friedman’s study, “Quality of Life in Patients with Confirmed and Suspected Spinal CSF Leaks”—funded by your research donations.
Meet our Medical Advisors: Dr. Andrew Callen
Meet Dr. Andrew Callen, member of the Spinal CSF Leak Foundation’s medical advisory board.
In conversation with Dr. Mark Mamlouk
Dr. Mamlouk discusses a new paper on the importance of injectate placement and early treatment as the key to positive outcomes in fibrin occlusion for CSF-venous fistula.
Invisible Disabilities Week
Spinal CSF leak is a disabling condition that isn’t always visible from the outside—or even from the inside, despite sophisticated medical imaging.
Spinal CSF Leak and Dysautonomia
With such overlap in symptoms between spinal CSF leak and dysautonomic conditions, it’s important to consider the possibility of an underlying cause of spinal CSF leak.
International Ataxia Awareness Day
Ataxia, a degenerative neurological disorder that affects movement and coordination, can be a rare symptom of intracranial hypotension due to spinal CSF leak.
World FTD Awareness Week
Spinal CSF leak patients can experience a range of neurological symptoms and complications—including symptoms that resemble that of dementia.
Patient Stories: Anna
Spinal CSF leak is often confused with other diagnoses. Like so many patients, Anna was told her symptoms were due to sinus infection or migraine. Here is her story.
Share your voice
Share your voice at the Nov. 11 “Spinal CSF Leak: Bridging the Gap Between Patients and Providers” conference!
Patient Stories: A leak at 71
Spinal CSF leak can affect anyone at any age. John was 71 years old when he experienced the first symptoms of a leak. Here is John’s story.