Connie Rim shared her thoughts with us about how she plans to participate in this year's #duradash. Visit her #duradash page to see progress updates and to give your support! Check out Connie's #duradash page here! Connie, who is 48, acquired two spinal CSF leaks...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
By Andi Buchanan Taking responsibility Years before I had my spinal CSF leak, I was an avid yoga-goer. I did Ashtanga yoga and really loved the practice of it, the way that each day on the mat offered a different possibility. One day, I was struck by something the...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
Headache on the Hill, which took place March 22-23, is an annual advocacy event in Washington DC organized by the Alliance for Headache Disorders Advocacy (AHDA), whose mission is to advocate for equitable policies for people with headache diseases—including...
It’s National Doctors' Day! We are so grateful for the tireless efforts of the physicians on our medical advisory board to not only help diagnose and treat people living with spontaneous intracranial hypotension and spinal CSF leak, but to continually push research...
Sometimes, intracranial hypotension (low intracranial cerebrospinal fluid volume/pressure) due to spinal cerebrospinal fluid (CSF) leak can be mistakenly attributed to Chiari malformation. The cerebellum is the part of the brain located behind the top of the brain...
Central nervous system manifestations Central nervous system complications from low CSF volume and pressure secondary to spinal CSF leak may or may not be directly related to the low CSF volume and pressure but are very frequently reported. These include: Cognitive...
Intracranial hypotension (low cerebrospinal fluid volume and pressure) from a spinal CSF leak is increasingly recognized as a cause of subdural fluid or blood collections such as subdural hygromas (a collection of fluid in subdural space) and subdural hematomas...