Many people experiencing intracranial hypotension due to a spinal cerebrospinal fluid (CSF) leak find physical activity challenging due to their limited ability to be upright for prolonged periods of time. In a previous post, we focused on deconditioning in...
Get ready to #duradash — a virtual race in association with #leakweek Help to raise awareness of #spinalCSFleak #becauseyourduramatersIt is easy to participate!What is #duradash? #duradash will allow you to participate in a virtual race of any activity you are able to...
Our friends at the National Headache Foundation (NHF) feature Low Pressure Headache or intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak on this episode of HeadsUp. In this podcast, Dr. Vincent Martin, president of the NHF, explains how some people...
We are so excited to share the news that a new non-profit organization has been formed in Canada to advance awareness and research on spinal CSF leak and intracranial hypotension. Like our foundation here in the USA, the founders have been impacted by this disorder....
Join us for an Ask the Expert event from Monday, February 4 thru Thursday, February 7 with Dr. Linda Gray Leithe, neuroradiologist at Duke University. She will be available to answer (typed) questions about #spinalCSFleak on our #Inspire support community.Stop in...
We were delighted to award three research grants on intracranial hypotension in 2018. The projects and principal investigators are listed below. We look forward to sharing progress reports on these research projects when available. Thanks to these investigators...
Duke University Medical Center is hosting a half-day conference for health professionals on Intracranial Hypotension Date: Saturday, March 23, 2019Location: Raleigh, NC This half-day multidisciplinary course on Intracranial Hypotension secondary to spinal...
At the recent Intracranial Hypotension Symposium on October 13, 2018, two of the sessions featured topics on CSF dynamics and other measurements in intracranial hypotension. Much of this information was new to the symposium attendees and is expected to...
We were thrilled to have three top headache neurologists as speakers at the Intracranial Hypotension Symposium on October 13, 2018 in Marina del Rey, CA. The symposium was hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation. These 3 experts...
This session by Peter G. Kranz, MD from the Intracranial Hypotension Symposium on October 13, 2018 discusses Ten Common Myths and Misconceptions about Spontaneous Intracranial Hypotension. Peter G. Kranz, MD Assistant Professor Director of Spine...
Artwork by Ashley Fromm When Ashley was a 20-year-old college student, she developed a headache behind her left eye. At first, she didn’t think much of it: it was a headache, it would pass. Except it didn’t. For four years, Ashley struggled to cope with her pain, and...
We were delighted to see Dr. Wouter Schievink share his updated approach to the care of patients with intracranial hypotension after the 1st 1111 patients at the Intracranial Hypotension Symposium on October 13, 2018 in Marina del Rey, CA. He kindly agreed to...