Kat, mother of one, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Kat
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Updates from the Spinal CSF Leak Foundation
Tough Mothers: Cara Gady Church
Cara, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Sanela Vatres
Sanela, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Lindsay Newquist
Lindsay, mother of two, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Kellye Smith
Kellye, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Ketura Sumner
Ketura, mother of two, shares her thoughts on parenting with a spinal CSF leak.
An opportunity to advocate
Join us in taking action to address healthcare disparities within the American Indian/Alaska Native (AI/AN) communities. Sign on to the letter of support by April 28, 2022! These communities have the highest prevalence of disabling headaches in our country, but...
Patient Stories: Reckoning with a life-long mystery
Monica lived with symptoms for nearly 30 years before she was finally correctly diagnosed and treated for a spinal CSF leak. Here is Monica’s spinal CSF leak story.
Patient Stories: Reckoning with a spinal CSF leak during lockdown
Lillie’s spinal CSF leak struck at the height of COVID lockdown in the UK, which made it challenging for her to find care.
Raising Awareness via TikTok
Connie shares how she works to raise awareness despite being profoundly affected by spinal CSF leak.
Rare Disease Day 2022
On Rare Disease Day 2022 we discuss what’s rare about SIH.
Headache on the Hill 2022
The Spinal CSF Leak Foundation sent several advocates to HoH 2022, including Michell Cromer, who shared her experience with us.