Updates from the Spinal CSF Leak Foundation

Berhanu’s spinal CSF leak story

Berhanu’s spinal CSF leak story

Like so many spinal CSF leak patients, Berhanu’s leak affected not just him but his entire family—and when he suffered a grave complication, it turned out their role in his treatment was critical. https://www.youtube.com/watch?v=zE9tD2p5kXA Berhanu has taken on many...

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Our mission, vision, and values

Our mission, vision, and values

The Board of Directors of Spinal CSF Leak Foundation reviews our Mission, Vission, Values, Goals, and plans on an annual basis. Earlier this year, before the COVID-19 pandemic escalated, we met to do so again. Have a look! Our Mission: to reduce the suffering of...

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Because your dura maters—and so does diagnostic coding

Because your dura maters—and so does diagnostic coding

ICD-10 diagnostic codes for intracranial hypotension and spinal CSF leak When health professionals evaluate patients, they assign diagnostic labels with codes to the patient’s medical record. These codes are from the International Classification of Diseases, Tenth...

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Jeff’s spinal CSF leak story

Jeff’s spinal CSF leak story

Jeff suffered from textbook symptoms of intracranial hypotension with zero results on imaging. But after extensive testing, the reason for his symptoms was finally discovered. https://youtu.be/SahyKOsvdKg Jeff was 44 when his headache first began. It came on in...

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Our Statement

Our mission at the Spinal CSF Leak Foundation is to reduce the suffering of persons affected by intracranial hypotension or spinal cerebrospinal fluid leak. As a foundation, we honor such values as integrity and compassion, inclusivity that celebrates and respects our...

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Treatment – sessions from #SIH2020

Treatment – sessions from #SIH2020

Five #SIH2020 symposium sessions on the treatment of intracranial hypotension are presented here, on-demand. Percutaneous adventures in SIHLinda Gray Leithe, MDAssociate ProfessorDivision of Neuroradiology, Department of RadiologyDuke University Medical Center,...

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Ultimate tag: a spinal CSF leak survivor chases his limits

Ultimate tag: a spinal CSF leak survivor chases his limits

An interview with stuntman and spinal CSF leak patient Zac Gordon. Like most patients with a spinal cerebrospinal fluid (CSF) leak, when Zac Gordon had spinal surgery after seven years of suffering, he looked forward to returning to his normal routine as soon as...

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New insights – sessions from #SIH2020

New insights – sessions from #SIH2020

Here are three more great video replays from the Intracranial Hypotension Symposium held on February 8, 2020. Some Misconceptions About CSF PhysiologyAbhay Moghekar, MBBSAssociate Professor of Neurology, Otolaryngology & NeurosurgeryResearch Director, Center for...

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Diagnostic imaging – sessions from #SIH2020

Diagnostic imaging – sessions from #SIH2020

Check out these FOUR video replays of sessions on diagnostic imaging from the Intracranial Hypotension Symposium #SIH2020 held on February 8, 2020. Imaging of SIH: 30-year experience at UCSFWilliam Dillon, MDElizabeth A. Guillaumin Professor of RadiologyExecutive...

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Clinical presentations of SIH – sessions from #SIH2020

Clinical presentations of SIH – sessions from #SIH2020

The clinical presentations of intracranial hypotension due to spinal CSF leak can be quite variable. These THREE on-demand videos from sessions at the Intracranial Hypotension Symposium held on February 8, 2020 should not be missed. Basics of Spontaneous and...

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Ochsner investigators awarded 2020 research grant

Ochsner investigators awarded 2020 research grant

We are pleased to announce this intracranial hypotension research grant to Principal Investigator, Fawad A. Khan, MD and Co-Investigator, Jonathan D. Nussdorf, MD of Ochsner Clinic Foundation in New Orleans, LA. This is one of two research grants awarded during the...

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2020 research grant awarded to Duke investigators

2020 research grant awarded to Duke investigators

We are pleased to announce this intracranial hypotension research grant to Principal Investigator, Timothy Amrhein, MD and Co-Investigator, Linda Gray Leithe, MD, neuroradiologists at Duke University Medical Center in Durham, NC. Development of a Novel Flexible Needle...

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