Spinal CSF Leak Foundation is thrilled to share the news that Andrea Buchanan has been hired as the Foundation’s first Executive Director. Andi has been a volunteer with the Spinal CSF Leak Foundation since 2018, and a member of the Board of Directors since 2019. Andi...
https://youtu.be/nNtdSEaUgPo In this video, recorded at last year’s Symposium, medical professionals share their top take-aways from the annual Cedars-Sinai Intracranial Hypotension Symposium hosted in partnership with the Spinal CSF Leak Foundation. For more...
https://youtu.be/7dfQzZJ9Ezg In this video, recorded at last year’s Symposium, physicians share their thoughts on why it's so important for medical professionals and others to attend the annual Cedars-Sinai Intracranial Hypotension Symposium hosted in partnership with...
DEADLINE EXTENDED! Applications due by Monday, April 12, at 5 pm Eastern We are excited to announce that the Spinal CSF Leak Foundation is now accepting proposals for research grants that advance the understanding, diagnosis, or treatment of intracranial hypotension....
The next Intracranial Hypotension Symposium hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation will be held on October 2, 2021. Watch for more details on the agenda and other details in coming weeks.
As we look back on this tumultuous year, it’s encouraging to reflect on what the Foundation has been able to accomplish with the unwavering support of this community. Symposium: Our third annual Cedars-Sinai Intracranial Hypotension Symposium was held on February 8,...
Alice’s headache started after a sinus infection—but wouldn’t end until she had surgery to address the CSF-venous fistula causing her spinal CSF leak symptoms. https://youtu.be/jzv7TRXwovE Alice is one of those people for whom the term “go-getter” was invented. At 58,...
https://youtu.be/70Z79rYL-xA This powerful video from Dr. Deborah Friedman, member of the Foundation’s Medical Advisory Board, speaks to the challenges of #spinalCSFleak and why it’s so incredibly important that we keep striving for answers. Tomorrow, Dec 1, is...
https://www.youtube.com/watch?v=_pN_P9p40dE&feature=youtu.be&ab_channel=SpinalCSFLeakFoundation In this short video, filmed at our Symposium in February 2020, Medical Advisory Board member Dr. Jeremy Cutsforth-Gregory mentions the surprising variance in...
https://www.youtube.com/watch?v=E4Yfgkmy-Io&feature=youtu.be&ab_channel=SpinalCSFLeakFoundation GivingTuesday is just around the corner! In this conversation recorded at our Symposium this past February, Dr. Moghekar underlines the importance of a personalized...
This GivingTuesday, Dec. 1, 2020, is a global day of giving, when people around the world donate to support causes they care about. This year, we are fundraising to accelerate research to advance our understanding of all aspects of spinal CSF leak and to improve...
Unlike most patients, who endure months or even years of misdiagnosis and unnecessary medications and testing, Mason benefitted from the quick-thinking actions of his long-time personal physician. https://youtu.be/eVyqlOqNU68 Mason was 53 when his headache started. He...