All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!
LeakWeek2022: FACT vs FICTION final!
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Updates from the Spinal CSF Leak Foundation
A Caregiver’s Perspective: Burke’s story
When Jack showed symptoms of a spinal csf leak at age 14, his parents Burke and Jody had to push hard for him to be taken seriously. See Burke’s story of being a caregiver for a child with spinal CSF leak.
A Caregiver’s Perspective: Jody’s story
When Jack showed symptoms of a spinal csf leak at age 14, his parents had to push hard for him to be taken seriously. See Jody’s story of being a caregiver for a child with spinal CSF leak.
Pushing back against denial: Jack’s spinal CSF leak story
When Jack showed symptoms of a spinal CSF leak at age 14, his parents had to push hard for him to be taken seriously. Here is Jack’s story.
#duradash2022 spotlight: Jennifer Harding
Jennifer Harding shared her thoughts with us about her experience with spinal CSF leak and how she plans to participate in #duradash2022.
LeakWeek2022: FACT vs FICTION, round two!
All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!
A Caregiver’s Perspective: Amberly’s story
When Amberly’s daughter Emma became ill, she was surprised by how elusive diagnosis and treatment were. See Amberly’s story of being a caregiver for a child with spinal CSF leak.
A sudden onset, a search for treatment: Emma’s spinal CSF leak story
Emma was an incredibly active child when she started exhibiting symptoms of spinal CSF leak. Now nearly 12 years into her recovery, she shares her experience with us here.
A Caregiver’s Perspective: Karri’s story
When Karri’s daughter Hailey became ill, it started their family on a ten-year search for answers. See Karri’s story of being a caregiver for a child with spinal CSF leak.
#duradash2022 spotlight: Lindsay Chandler
Lindsay Chandler shared her thoughts with us about her experience with spinal CSF leak and how she plans to participate in #duradash2022.
A decade-long search for answers: Hailey’s spinal CSF leak story
Hailey got her spinal CSF leak playing soccer as a child. It took her TEN YEARS to find a diagnosis and effective treatment. See her family’s stories here.
LeakWeek2022: FACT vs FICTION
All throughout leakweek, we’re sharing FACTS and FICTIONS about spinal CSF leak. Test your knowledge and share with family and friends who may not be aware!