Spinal CSF leak is often confused with other diagnoses. Like so many patients, Anna was told her symptoms were due to sinus infection or migraine. Here is her story.
Patient Stories: Anna
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Updates from the Spinal CSF Leak Foundation
Share your voice
Share your voice at the Nov. 11 “Spinal CSF Leak: Bridging the Gap Between Patients and Providers” conference!
Patient Stories: A leak at 71
Spinal CSF leak can affect anyone at any age. John was 71 years old when he experienced the first symptoms of a leak. Here is John’s story.
Announcing The Territory and the Map
The Territory and the Map is a podcast presented by the Spinal CSF Leak Foundation about the lived experience of spinal CSF leak.
Pain Awareness Month
For most people experiencing spinal CSF leak, pain is one of the most prominent, unrelenting, and challenging symptoms.
Meet our Medical Advisors: Dr. Mark Mamlouk
Meet Dr. Mark Mamlouk, member of the Spinal CSF Leak Foundation’s medical advisory board.
Idiopathic Intracranial Hypertension Awareness Month
Idiopathic Intracranial Hypertension or IIH is a condition characterized by increased pressure inside the skull.
2023 Intracranial Hypotension Conference: Dr. Wouter Schievink
Dr. Wouter Schievink presented this talk at the 2023 Cedars-Sinai Intracranial Hypotension Conference on July 8, 2023
2023 Intracranial Hypotension Conference: Dr. Deborah Friedman
Dr. Deborah Friedman presented this talk at the 2023 Cedars-Sinai Intracranial Hypotension Conference on July 8, 2023
Announcing two new medical advisors
The Spinal CSF Leak Foundation is pleased to announce two additions to our Medical Advisory Board: Dr. Andrew Callen and Dr. Mark Mamlouk.
2023 Conference: A chance to make a difference
Fellow Education Funding Award recipient Dr. Emma Sechrist shares her thoughts on attending the 2023 Intracranial Hypotension Conference
RAREis Grant Awards Announced
We are pleased to share the news that we have been selected as a 2023 #RAREis Global Advocate Grant award recipient.