#leakweek 2023

 

This year’s awareness week, #leakweek2023, took place June 4–10, 2023!

All throughout leakweek, we shared information about spinal CSF leak to help more patients living with this under-diagnosed and disabling neurologic disorder receive correct and timely diagnosis and treatment. Once again, we were thrilled to team up with Spinal CSF Leak Canada and the CSF Leak Association in the UK to make leak week truly international.

 

Leak Week 2023

Leak Week Day One

Welcome to Leak Week, our annual awareness week for spinal CSF leak and intracranial hypotension! This year we teamed up again with Spinal CSF Leak Canada and the UK CSF Leak Association to share information, news, and facts about spinal CSF leak to raise awareness about this debilitating condition that affects people worldwide.

First up: What is a spinal CSF leak?

Leakweek 2023: what is a spinal CSF leak

Leak Week Day Two

For Leak Week day two, we discussed symptoms of spinal CSF leak.

Symptoms of Spinal CSF Leak

Leak Week Day Three

For LeakWeek Day Three, we discussed causes of spinal CSF leak and shared a powerful story of friendship. 

Read more about spinal CSF leak causes, and types of spontaneous spinal CSF leaks. 

 

Leakweek 2023 causes

 

See Anthony and Zack’s story, “The Sky’s the Limit: A Friendship Reaches New Heights”

the sky's the limit: Anthony and Zack pose with their Ironman medals

Leak Week Day Four

For LeakWeek Day Three, we shared a powerful look at life with a spinal CSF leak from the point of view of those who have one: #theviewfromhere

 

And we also got some advice from Anthony and Zack for people with leaks and those who love them: The Sky’s the Limit: Advice from Zack and Anthony

Advice from Anthony and Zack about coping with spinal CSF leak and supporting those who have one

Leak Week Day Five

For LeakWeek Day Five, we talked about spinal CSF leak diagnosis.

Leak Week 2023: Diagnosis path

 

 

Leak Week Day Six

For LeakWeek Day Six, we talked about spinal CSF leak treatment.

leak week 2023 treatment overview

 

 

Leak Week Day Seven

For LeakWeek Day Seven, we talked about the importance of spinal CSF leak research, shared research updates, and looked ahead to what’s on the horizon.

Read about spinal CSF leak research here:

leak week 2023 research

 

Read the update on Dr. Friedman’s quality of life study:

research update

 

And see what’s coming up next here :

leak week looking ahead

Leak Week Information

Here is some information about leak week that you can download and share as you raise awareness.

Fact Sheet

Spinal CSF Leak Information

Here is some information about the Spinal CSF Leak Foundation and the work we do, as well as some general information about spinal CSF leak that you can share as you raise awareness during leak week.

About us (PDF)
The history and mission of the Spinal CSF Leak Foundation

Infographic (PDF)
Our programs in education, research, and awareness

Brochure: Learn About Intracranial Hypotension (PDF)

Trifold: A Patient’s Guide to Spontaneous Intracranial Hypotension (PDF)