Patient Stories

Find out what it’s like to live with spinal CSF leak through the experiences of our patient storytellers. Read their accounts below, or watch them share their stories through video.

Lianne’s headache story

Lianne’s headache story

Delayed diagnosis of intracranial hypotension due to spinal CSF leak remains common. Lianne suffered with debilitating daily headache for 15 years before she was correctly diagnosed and treated. Here is Lianne’s story. Lianne, with Scrappy Doodle, Gus & Codie In...

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Spontaneous Spinal CSF Leak – Lori’s Story

After Lori first sought help from a neurologist for her headaches, it took five years before she finally received a proper diagnosis. Lori’s story has features in common with many who suffer with spontaneous spinal cerebrospinal fluid (CSF) leaks. She endured years of...

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Spinal CSF Leak – Audrey’s Story

Audrey shares the story of her spinal CSF leak from a labor epidural gone wrong. Can you imagine coming home to your husband and five-year-old son with your newborn son AND a severe headache when upright? Imagine trying to take care of your family when being upright...

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