Diane thought her spinal CSF leak had been thoroughly treated. But when her symptoms returned, it would take nearly eight years and surgery to fully address the underlying cause: a CSF-venous fistula. It was summer 2008 when Diane, on vacation with her family, bent...
Andrea J. Buchanan is a New York Times bestselling author whose latest book is THE BEGINNING OF EVERYTHING. She chronicles her experience with a spinal cerebrospinal fluid (CSF) leak that abruptly derailed her ability to function and to think normally. She leads us...
Delayed diagnosis of intracranial hypotension due to spinal CSF leak remains common. Lianne suffered with debilitating daily headache for 15 years before she was correctly diagnosed and treated. Here is Lianne’s story. Lianne, with Scrappy Doodle, Gus & Codie In...
After Lori first sought help from a neurologist for her headaches, it took five years before she finally received a proper diagnosis. Lori’s story has features in common with many who suffer with spontaneous spinal cerebrospinal fluid (CSF) leaks. She endured years of...
Audrey shares the story of her spinal CSF leak from a labor epidural gone wrong. Can you imagine coming home to your husband and five-year-old son with your newborn son AND a severe headache when upright? Imagine trying to take care of your family when being upright...