Cara, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Cara Gady Church
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Patient Stories
Find out what it’s like to live with spinal CSF leak through the experiences of our patient storytellers. Read their accounts below, or watch them share their stories through video.
Tough Mothers: Sanela Vatres
Sanela, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Lindsay Newquist
Lindsay, mother of two, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Kellye Smith
Kellye, mother of three, shares her thoughts on parenting with a spinal CSF leak.
Tough Mothers: Ketura Sumner
Ketura, mother of two, shares her thoughts on parenting with a spinal CSF leak.
Patient Stories: Reckoning with a life-long mystery
Monica lived with symptoms for nearly 30 years before she was finally correctly diagnosed and treated for a spinal CSF leak. Here is Monica’s spinal CSF leak story.
Patient Stories: Reckoning with a spinal CSF leak during lockdown
Lillie’s spinal CSF leak struck at the height of COVID lockdown in the UK, which made it challenging for her to find care.
Raising Awareness via TikTok
Connie shares how she works to raise awareness despite being profoundly affected by spinal CSF leak.
Patient Stories: Spinal CSF Leak and Migraine
These three patients all share the same story: They were told their symptoms were due to migraine, when really they had a spinal CSF leak.
Patient Stories: Spinal CSF Leak and CSF-Venous Fistula
These three patients all share the same story: Their symptoms were due to a spinal CSF leak cause by a CSF-venous fistula.
Kathy’s Spinal CSF Leak Story
For many people experiencing spinal cerebrospinal fluid (CSF) leak, the most prominent symptom is a headache that worsens when upright and improves when lying down. But some patients never experience this kind of orthostatic headache symptom. Kathy Webster was one of...
Asia’s Spinal CSF Leak Story
Asia had to fight to have her pain taken seriously as a Black woman with an invisible illness. But she found a community online that helped connect her with specialists who correctly diagnosed and treated her spinal CSF leak. https://youtu.be/EbQsq6Tq9T8 Asia Gibson...