With such overlap in symptoms between spinal CSF leak and dysautonomic conditions, it’s important to consider the possibility of an underlying cause of spinal CSF leak.
Spinal CSF Leak and Dysautonomia
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News
International Ataxia Awareness Day
Ataxia, a degenerative neurological disorder that affects movement and coordination, can be a rare symptom of intracranial hypotension due to spinal CSF leak.
World FTD Awareness Week
Spinal CSF leak patients can experience a range of neurological symptoms and complications—including symptoms that resemble that of dementia.
Share your voice
Share your voice at the Nov. 11 “Spinal CSF Leak: Bridging the Gap Between Patients and Providers” conference!
Announcing The Territory and the Map
The Territory and the Map is a podcast presented by the Spinal CSF Leak Foundation about the lived experience of spinal CSF leak.
Pain Awareness Month
For most people experiencing spinal CSF leak, pain is one of the most prominent, unrelenting, and challenging symptoms.
Meet our Medical Advisors: Dr. Mark Mamlouk
Meet Dr. Mark Mamlouk, member of the Spinal CSF Leak Foundation’s medical advisory board.
Idiopathic Intracranial Hypertension Awareness Month
Idiopathic Intracranial Hypertension or IIH is a condition characterized by increased pressure inside the skull.
Announcing two new medical advisors
The Spinal CSF Leak Foundation is pleased to announce two additions to our Medical Advisory Board: Dr. Andrew Callen and Dr. Mark Mamlouk.
2023 Conference: A chance to make a difference
Fellow Education Funding Award recipient Dr. Emma Sechrist shares her thoughts on attending the 2023 Intracranial Hypotension Conference
RAREis Grant Awards Announced
We are pleased to share the news that we have been selected as a 2023 #RAREis Global Advocate Grant award recipient.
2023 Intracranial Hypotension Conference: Highlights
Highlights from this year’s Intracranial Hypotension Conference, which took place July 8-9, 2023