A talk by Dr. Deborah Friedman at the Bridging the Gap Conference on November 11, 2023.
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Dr. Marius Birlea: Challenges in the Diagnosis of Intracranial Hypotension
A talk by Dr. Marius Birlea at the Bridging the Gap Conference on November 11, 2023.
Opening Remarks: Dr. Andrew Callen
Opening remarks: Dr. Andrew Callen opened our inaugural Bridging the Gap conference with a welcome that was also a stirring call to action.
National Family Caregivers Month
November is National Family Caregivers Month. Many people with spinal CSF leak rely on family members and caregivers for help with daily life.
Meet our Medical Advisors: Dr. Andrew Callen
Meet Dr. Andrew Callen, member of the Spinal CSF Leak Foundation’s medical advisory board.
Invisible Disabilities Week
Spinal CSF leak is a disabling condition that isn’t always visible from the outside—or even from the inside, despite sophisticated medical imaging.
Spinal CSF Leak and Dysautonomia
With such overlap in symptoms between spinal CSF leak and dysautonomic conditions, it’s important to consider the possibility of an underlying cause of spinal CSF leak.
Registration now open!
Registration is now open for the “Bridging the Gap” conference this November 11th!
International Ataxia Awareness Day
Ataxia, a degenerative neurological disorder that affects movement and coordination, can be a rare symptom of intracranial hypotension due to spinal CSF leak.
World FTD Awareness Week
Spinal CSF leak patients can experience a range of neurological symptoms and complications—including symptoms that resemble that of dementia.
Share your voice
Share your voice at the Nov. 11 “Spinal CSF Leak: Bridging the Gap Between Patients and Providers” conference!
Chiari Malformation Awareness Month
Chiari 1 Malformation and spinal CSF leak have much in common—but they should not be confused, as treatment varies significantly.