Remember to let the world know on February 28th that spontaneous Spinal CSF Leaking is a rare disease and those who are impacted desperately need: • Increased funding for research • More timely and accurate diagnosis • Improved quality of patient care • Better...
Lumbar punctures play an important role in diagnostics and treatments in medicine but can result in a persistent spinal CSF leak after the procedure, often termed a post-dural puncture headache (PDPH). This is the most common iatrogenic cause of spinal CSF leaking....
February 28 is Rare Disease Day. A disease or disorder is defined as rare in the US when it affects fewer than 200,000 Americans at any given time. Spontaneous spinal CSF leaks are considered rare in the USA with an estimated incidence of 1 in 20,000 per year....
Our foundation application with the IRS for non-profit status, 501(c)3, was approved. Accordingly, we are now accepting tax-deductible donations which will help us in our mission to positively impact the lives of those affected by spinal CSF leaks.
This new publication abstract has been added to our Publications Abstracts resource page. Carefully selected patients with intractable intracranial hypotension may have improved quality of life with a long-term implanted epidural catheter for infusion of saline. The...
We've added this new abstract to our Publications Abstracts resource page. Hyperprolactinemia due to spontaneous intracranial hypotension Schievink WI, Nuño M, Rozen TD, Maya MM, Mamelak AN, Carmichael J, Bonert VS J Neurosurg. 2014 Nov 7:1-6. [Epub ahead of print]...
We have added the abstract from a new publication authored by Wouter Schievink, MD and colleagues, published online today by Neurology. They studied 338 patients with spontaneous intracranial hypotension (SIH) and compared them with 245 patients with unruptured...
See the new [otw_shortcode_button href=" http://spinalcsfleak.org/?p=44" size="medium" bgcolor="#503170" icon_position="left" shape="radius" color_class="otw-silver"]Video Series[/otw_shortcode_button] about spinal CSF leaks featuring Wouter Schievink, MD,...
We have added the abstract from a new publication. See the Publications Abstracts resource page.
A paper authored by neuroradiologists at Duke university was published online yesterday. They did a retrospective review of clinical history, imaging findings, and outcomes for patients who had iatrogenic (surgical) spinal CSF leaks. While the patient numbers were...
New abstracts have been added to the Publication Abstracts resource page.
Our newly formed health advocacy foundation to support education, research and those affected by spinal CSF leaking launches a new website today. Our 501(c)3 application for non-profit status is in process. Once that is approved we will be ready to accept...