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POTS, positional orthostatic tachycardia syndrome, is a type of autonomic dysfunction in which patients experience symptoms and signs with upright posture. Spinal CSF leak also causes symptoms and signs that are worse with upright posture. It should be no surprise...
The Intracranial Hypotension Symposium to be held on October 14, 2017 will be hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation. Location: Casa del Mar, 1910 Ocean Way, Santa Monica, CA 90405 Course Description: This full-day multidisciplinary...
Today is DAY 7 of Spinal CSF Leak Awareness Week. Our focus for our last day of Leak Week is: Prognosis of spinal cerebrospinal fluid (CSF) leak and Looking Forward. Prognosis While published patient outcomes remain rather limited, we do know that most patients do...
Today is DAY 6 of Spinal CSF Leak Awareness Week. Our focus for today is: Treatment of spinal cerebrospinal fluid (CSF) leak, also known as intracranial hypotension. Treatment Treatments for spinal CSF leaks vary from conservative to surgical procedures. The specific...
Today is DAY 5 of Spinal CSF Leak Awareness Week. We will focus today on Causes and Classification of spinal cerebrospinal fluid (CSF) leak, also known as intracranial hypotension. Causes There are 3 main causes of spinal CSF leak: • Medical procedures (lumbar...
Today is DAY 4 of Spinal CSF Leak Awareness Week. Our focus for today is on: Diagnosis of spinal Cerebrospinal fluid (CSF) leak. For the majority of patients with spinal CSF leak, the diagnosis is missed entirely or delayed by months or years. Because this is...
Today is Rare Disease Day. A disease or disorder is defined as rare in the US when it affects fewer than 200,000 Americans at any given time. A disease or disorder is defined as rare in Europe when it affects fewer than 1 in 2000. Spontaneous spinal CSF leak is...
Today is DAY 2 of Spinal CSF Leak Awareness Week. Our focus for today is: Symptoms of spinal cerbebrospinal fluid (CSF) leak. We will be covering other aspects of spinal CSF leak throughout the week. The most common symptom is a positional headache, worse when upright...
Today is DAY 1 of Spinal CSF Leak Awareness Week. Spinal cerebrospinal fluid (CSF) leak is an important cause of new onset headache that can be very disabling. Importantly, it is treatable and can be curable with the correct diagnosis and with access to the right...
Landmarks across North America will support Spinal CSF Leak Foundation’s Leak Week with Purple lighting! Buildings and iconic landmarks in cities such as New York City, Philadelphia, Buffalo, Chicago, Cleveland, Atlanta, Miami and Toronto will be lit Purple during the...
PA Senate Democratic Floor Leader Jay Costa from Pittsburgh spoke before the Pennsylvania Senate today in support of Rare Disease Day 2017 and specifically in support of Spinal CSF Leak and our Foundation. Watch him speak. Many thanks to Senator Costa for his advocacy...