March 8 is the day during #leakweek 2018 to wear PURPLE for Spinal CSF Leak Awareness Did you know that PURPLE is also the color for awareness of all headache disorders? If you have any purple clothing items, time to get them ready. If you don't have any purple...
News
Shining purple across North America for #leakweek
During #leakweek 2018 March 4 - 10 Landmarks across North America will be shining PURPLE because your dura maters℠ Confirmed landmarks are listed here. Monday March 5, 2018 Pennsylvania State Capitol - Harrisburg, PA US Bank Tower Crown Lights - Los...
10 ways to get involved with #leakweek 2018
Here are 10 ways to get involved with #leakweek 2018 - because your dura maters℠ 1. Check in with us all week on Twitter and Facebook and share tweets and posts. 2. Decorate your home (and/or office) with PURPLE lights or PURPLE bulbs in house lanterns....
#leakweek 2018 is just one month away!
Just one month until #leakweek 2018 : March 4 - 10 #leakweek 2018 because your dura maters℠ No, it isn't a typo. dura mater = the tough layer around the brain and spinal cord that normally holds in the cerebrospinal fluid (CSF) Our theme for #leakweek 2018 is...
Symposium videos from professional track are here!
The videos from the sessions in the professional track of the Intracranial Hypotension Symposium on October 14, 2017 are now available for on-demand viewing. If you were unable to attend, here is your chance to view the presentations. Please share to extend our reach!...
Symposium videos from patient track now available
The videos from the sessions in the patient/caregiver track of the Intracranial Hypotension Symposium on October 14th are now available for on-demand viewing. If you were unable to attend, here is your chance to view the presentations. The professional track videos...
New Review Published by Duke Team
This is an excellent new review on the diagnosis and treatment of spontaneous intracranial hypotension from the team of neuroradiologists at Duke University. Update on the Diagnosis and Treatment of Spontaneous Intracranial Hypotension. Kranz PG, Malinzak MD, Amrhein...
Normal CSF Pressures Common in Spontaneous Intracranial Hypotension
Intracranial hypotension means low pressure inside the head. This refers to low cerebrospinal fluid (CSF) pressure, which results from the loss of CSF volume, almost always from a CSF leak at the level of the spine. However, normal cerebrospinal fluid (CSF) pressures...
Why are Diagnostic Codes Important?
When health care professionals see patients, they attach diagnostic labels with codes to the patient’s medical record. These codes are from ICD -10, the International Classification of Diseases, Tenth Revision. How are these used and why are these codes important? •...
Lumbar Puncture – reducing the risk of post-procedure headache
A lumbar puncture is the most common cause of a spinal cerebrospinal fluid (CSF) leak. The most common manifestation is a positional headache within a day or two of the procedure. Can we reduce the risk? Sometimes, the dura (tough outermost layer of meninges holding...
Support us when you shop
There are two ways that you can support us when you shop online at no cost to you. 1) When you shop with Amazon, start with AmazonSmile and Amazon will donate to our foundation - smile.amazon.com http://smile.amazon.com/ch/47-1141080 2) When you shop a wide...
POTS or a spinal CSF leak?
POTS, positional orthostatic tachycardia syndrome, is a type of autonomic dysfunction in which patients experience symptoms and signs with upright posture. Spinal CSF leak also causes symptoms and signs that are worse with upright posture. It should be no surprise...