by Jayne Barsic, DPT "I hope that someday I'll be as good of a husband as your dad. No husband loves his wife as much as your dad loves your mom." This was said to my daughter by a young man after our annual golf outing for the Spinal CSF Leak Foundation. The life of...
Our mission is to reduce the suffering of those affected by spinal cerebrospinal fluid (CSF) leaks. How? - raising awareness - educating the general public and those affected - educating healthcare professionals - supporting research By funding research through...
[Content warning: Suicide] Karen’s story continues, thanks to Bob’s extraordinary efforts to raise awareness in her memory.
It took years before Allie was able to find a proper diagnosis. But eventually she was able to get treatment for her spinal CSF leak. Allie McDaniels, before and after her surgery Allie McDaniels just got braces. That might not seem like a huge achievement for a...
Zac Gordon is not your average spinal CSF leak patient. As a quirky stuntman, he charmed Howard Stern on “America’s Got Talent.” As a gym instructor, he teaches kids “ninja” parkour skills. Just 4 months after spinal surgery, he is back to doing flips again. Zac with...
Disability Associated with Headache Disorders is Underappreciated This awareness day is part of Migraine & Headache Awareness Month #MHAM A few facts: Migraine headache is the leading cause of disability among neurologic disorders. Migraine headache is the...
Today is Healthcare Provider Appreciation Day during Migraine & Headache Awareness Month. All those suffering with headache disorders are appreciative of the kind, professional and compassionate care provided by their healthcare providers, whether they be...
On this day to honor those we have lost during Migraine and Headache Awareness Month, I wish to share fond memories and appreciation of Bahram Mokri, MD. He joined Mayo Clinic Rochester in 1970 as a Neurology resident, then joined the staff there in 1974,...
Spontaneous Intracranial Hypotension: 10 Myths and Misperceptions This 2018 publication by the team of neuroradiologists in the Department of Radiology at Duke University Medical Center reviews the body of literature on spontaneous intracranial hypotension and...
Orthostatic headache, or headache that is worse when upright, is a key feature of intracranial hypotension due to spinal CSF leak, but is also a common feature in patients with postural orthostatic tachycardia syndrome (POTS). Getting the correct diagnosis is...
Often, when referring to any kind of cerebrospinal fluid leak, the non-specific term CSF leak is used. Few realize that a CSF leak may arise in the head OR in the spine, AND that these are two different disorders. Let’s try to clear up some of the confusion. What is a...
The diagnosis of intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak can be challenging for physicians and other healthcare professionals. Even though the most frequent symptom is a positional headache – worse after minutes to hours upright and...