[Content warning: Suicide] Karen’s story continues, thanks to Bob’s extraordinary efforts to raise awareness in her memory.
When Pain is Relentless
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News
The answer to Allie’s pain
It took years before Allie was able to find a proper diagnosis. But eventually she was able to get treatment for her spinal CSF leak. Allie McDaniels, before and after her surgery Allie McDaniels just got braces. That might not seem like a huge achievement for a...
Zac’s journey to a headache cure
Zac Gordon is not your average spinal CSF leak patient. As a quirky stuntman, he charmed Howard Stern on “America’s Got Talent.” As a gym instructor, he teaches kids “ninja” parkour skills. Just 4 months after spinal surgery, he is back to doing flips again. Zac with...
Disability in Headache Disorders
Disability Associated with Headache Disorders is Underappreciated This awareness day is part of Migraine & Headache Awareness Month #MHAM A few facts: Migraine headache is the leading cause of disability among neurologic disorders. Migraine headache is the...
#MHAM Healthcare Provider Appreciation Day
Today is Healthcare Provider Appreciation Day during Migraine & Headache Awareness Month. All those suffering with headache disorders are appreciative of the kind, professional and compassionate care provided by their healthcare providers, whether they be...
Remembering Bahram Mokri, MD
On this day to honor those we have lost during Migraine and Headache Awareness Month, I wish to share fond memories and appreciation of Bahram Mokri, MD. He joined Mayo Clinic Rochester in 1970 as a Neurology resident, then joined the staff there in 1974,...
10 Myths + Misperceptions
Spontaneous Intracranial Hypotension: 10 Myths and Misperceptions This 2018 publication by the team of neuroradiologists in the Department of Radiology at Duke University Medical Center reviews the body of literature on spontaneous intracranial hypotension and...
POTS, spinal CSF leak or BOTH?
Orthostatic headache, or headache that is worse when upright, is a key feature of intracranial hypotension due to spinal CSF leak, but is also a common feature in patients with postural orthostatic tachycardia syndrome (POTS). Getting the correct diagnosis is...
Are all CSF leaks similar?
Often, when referring to any kind of cerebrospinal fluid leak, the non-specific term CSF leak is used. Few realize that a CSF leak may arise in the head OR in the spine, AND that these are two different disorders. Let’s try to clear up some of the confusion. What is a...
Intracranial hypotension – many mimics
The diagnosis of intracranial hypotension due to spinal cerebrospinal fluid (CSF) leak can be challenging for physicians and other healthcare professionals. Even though the most frequent symptom is a positional headache – worse after minutes to hours upright and...
#leakweek 2018 in review
Today we would like to recap #leakweek 2018 Our primary goal of Leak Week has been to raise awareness about spinal cerebrospinal fluid (CSF) leak so that more patients might be correctly diagnosed and treated. We featured 3 very informative expert interviews: • Wouter...
Diane’s headache story
Diane thought her spinal CSF leak had been thoroughly treated. But when her symptoms returned, it would take nearly eight years and surgery to fully address the underlying cause: a CSF-venous fistula. It was summer 2008 when Diane, on vacation with her family, bent...