Our mission at the Spinal CSF Leak Foundation is to reduce the suffering of persons affected by intracranial hypotension or spinal cerebrospinal fluid leak. As a foundation, we honor such values as integrity and compassion, inclusivity that celebrates and respects our...
News
Treatment – sessions from #SIH2020
Five #SIH2020 symposium sessions on the treatment of intracranial hypotension are presented here, on-demand. Percutaneous adventures in SIHLinda Gray Leithe, MDAssociate ProfessorDivision of Neuroradiology, Department of RadiologyDuke University Medical Center,...
Ultimate tag: a spinal CSF leak survivor chases his limits
An interview with stuntman and spinal CSF leak patient Zac Gordon. Like most patients with a spinal cerebrospinal fluid (CSF) leak, when Zac Gordon had spinal surgery after seven years of suffering, he looked forward to returning to his normal routine as soon as...
New insights – sessions from #SIH2020
Here are three more great video replays from the Intracranial Hypotension Symposium held on February 8, 2020. Some Misconceptions About CSF PhysiologyAbhay Moghekar, MBBSAssociate Professor of Neurology, Otolaryngology & NeurosurgeryResearch Director, Center for...
Diagnostic imaging – sessions from #SIH2020
Check out these FOUR video replays of sessions on diagnostic imaging from the Intracranial Hypotension Symposium #SIH2020 held on February 8, 2020. Imaging of SIH: 30-year experience at UCSFWilliam Dillon, MDElizabeth A. Guillaumin Professor of RadiologyExecutive...
Clinical presentations of SIH – sessions from #SIH2020
The clinical presentations of intracranial hypotension due to spinal CSF leak can be quite variable. These THREE on-demand videos from sessions at the Intracranial Hypotension Symposium held on February 8, 2020 should not be missed. Basics of Spontaneous and...
Ochsner investigators awarded 2020 research grant
We are pleased to announce this intracranial hypotension research grant to Principal Investigator, Fawad A. Khan, MD and Co-Investigator, Jonathan D. Nussdorf, MD of Ochsner Clinic Foundation in New Orleans, LA. This is one of two research grants awarded during the...
2020 research grant awarded to Duke investigators
We are pleased to announce this intracranial hypotension research grant to Principal Investigator, Timothy Amrhein, MD and Co-Investigator, Linda Gray Leithe, MD, neuroradiologists at Duke University Medical Center in Durham, NC. Development of a Novel Flexible Needle...
Katie’s spinal CSF leak story
Katie’s spontaneous spinal CSF leak seemed to heal on its own, but several years later, a minor car accident resulted in a relapse. She needed surgery to get her life back. https://youtu.be/5OykwXWo3tc There was nothing that precipitated Katie’s headache. No accident,...
Emily did not have a pituitary tumor
Emily’s brain MRI led her doctors to think she had a pituitary tumor. Instead, what she really had was a spinal CSF leak. https://youtu.be/XKA1OeBnz5A Emily was a couple weeks into a one-month trial of Cross-Fit when the headaches started. Driving home after a...
Aiza’s headache story
Aiza’s spinal CSF leak was misdiagnosed for five years. Under the guidance of her doctor, she began trying every possible migraine medication, but nothing worked—because Aiza did not have a migraine headache. What she had was spontaneous intracranial hypotension due...
Supporting Research in 2019
We are now accepting proposals for research grants up to $25,000 on the topic of INTRACRANIAL HYPOTENSION.Please download the Request for Proposals Document for details. RFP-2019-Spinal-CSF-Leak-FoundationDownload