The next Intracranial Hypotension Symposium hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation will be held on October 2, 2021. Watch for more details on the agenda and other details in coming weeks.
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2020: The Year in Review
As we look back on this tumultuous year, it’s encouraging to reflect on what the Foundation has been able to accomplish with the unwavering support of this community. Symposium: Our third annual Cedars-Sinai Intracranial Hypotension Symposium was held on February 8,...
Alice’s Story
Alice’s headache started after a sinus infection—but wouldn’t end until she had surgery to address the CSF-venous fistula causing her spinal CSF leak symptoms. https://youtu.be/jzv7TRXwovE Alice is one of those people for whom the term “go-getter” was invented. At 58,...
GivingTuesday 2020: Dr. Friedman
https://youtu.be/70Z79rYL-xA This powerful video from Dr. Deborah Friedman, member of the Foundation’s Medical Advisory Board, speaks to the challenges of #spinalCSFleak and why it’s so incredibly important that we keep striving for answers. Tomorrow, Dec 1, is...
GivingTuesday 2020: Dr. Cutsforth-Gregory
https://www.youtube.com/watch?v=_pN_P9p40dE&feature=youtu.be&ab_channel=SpinalCSFLeakFoundation In this short video, filmed at our Symposium in February 2020, Medical Advisory Board member Dr. Jeremy Cutsforth-Gregory mentions the surprising variance in...
GivingTuesday 2020: Dr. Moghekar
https://www.youtube.com/watch?v=E4Yfgkmy-Io&feature=youtu.be&ab_channel=SpinalCSFLeakFoundation GivingTuesday is just around the corner! In this conversation recorded at our Symposium this past February, Dr. Moghekar underlines the importance of a personalized...
GivingTuesday 2020: Ways to Give!
This GivingTuesday, Dec. 1, 2020, is a global day of giving, when people around the world donate to support causes they care about. This year, we are fundraising to accelerate research to advance our understanding of all aspects of spinal CSF leak and to improve...
Mason’s spinal CSF leak story
Unlike most patients, who endure months or even years of misdiagnosis and unnecessary medications and testing, Mason benefitted from the quick-thinking actions of his long-time personal physician. https://youtu.be/eVyqlOqNU68 Mason was 53 when his headache started. He...
Berhanu’s spinal CSF leak story
Like so many spinal CSF leak patients, Berhanu’s leak affected not just him but his entire family—and when he suffered a grave complication, it turned out their role in his treatment was critical. https://www.youtube.com/watch?v=zE9tD2p5kXA Berhanu has taken on many...
Our mission, vision, and values
The Board of Directors of Spinal CSF Leak Foundation reviews our Mission, Vission, Values, Goals, and plans on an annual basis. Earlier this year, before the COVID-19 pandemic escalated, we met to do so again. Have a look! Our Mission: to reduce the suffering of...
Because your dura maters—and so does diagnostic coding
ICD-10 diagnostic codes for intracranial hypotension and spinal CSF leak When health professionals evaluate patients, they assign diagnostic labels with codes to the patient’s medical record. These codes are from the International Classification of Diseases, Tenth...
Jeff’s spinal CSF leak story
Jeff suffered from textbook symptoms of intracranial hypotension with zero results on imaging. But after extensive testing, the reason for his symptoms was finally discovered. https://youtu.be/SahyKOsvdKg Jeff was 44 when his headache first began. It came on in...