Part one of our interview with Dr. Deborah Friedman about her groundbreaking new study.
An Interview With Dr. Deborah Friedman for GivingTuesday 2021
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News
GivingTuesday 2021
Funding a groundbreaking new study by Dr. Deborah Friedman on quality of life in spinal CSF leak.
Research Update: Chiari 1 vs. SIH
A Foundation-funded study just published on differentiation between Chiari malformation type 1 and SIH
A new article on accidental dural puncture
Article: "Long-Term Morbidity of Accidental Dural Puncture Underappreciated" A new article, originally published in Anesthesiology News, features three clinicians discussing accidental dural punctures and how some patients don’t improve, even with epidural blood...
Recap: 2021 Symposium
The 2021 4th Annual Intracranial Hypotension Symposium, which took place on October 2, was a fantastic day of all-virtual presentations and discussions. We were thrilled to have so many clinicians and researchers sharing the latest advances in the diagnostic...
September 2021 Newsletter: One Month to the Symposium
Each month we send out an email newsletter to our subscribers. Below is our September 2021 newsletter. Click here to see past newsletters and subscribe! The 4th Annual Cedars-Sinai Intracranial Hypotension Symposium is just one month away! The Fourth Annual...
Symposium 2021 Update
The 4th Annual Cedars-Sinai Intracranial Hypotension Symposium on October 2, 2021, is now ALL-VIRTUAL! While the content is designed for health professionals, laypersons are welcome to attend, and registration is open now. Sign up today! This event would not be...
Patient Advisory Panel for Research
Just ten days left to apply! Last week, Spinal CSF Leak Foundation opened up applications for our new Patient Advisory Panel for Research. Inclusion of the patient voice in research is crucial, especially in the context of a rare disease, because no stakeholder can...
#duradash2021 awards
#duradash this year was a great success, thanks to our enthusiastic, passionate community of people who worked so hard to raise awareness and crucial funds for spinal CSF leak! Today we handed out some awards as congratulations for some of our notable participants....
#duradash spotlight round-up
We’ve been so excited to highlight #duradash participants in our “#duradash spotlight” series! With so many creative and thoughtful ways to “start where you are,” plus the sharing of such a variety of experiences with spinal CSF leak and their hopes for future...
Comments from our most recent symposium: Caregivers
https://youtu.be/UW1PyIq5Gdw In this video from our most recent symposium, caregivers share their biggest challenges and offer words of advice to those who love and care for people affected by spinal CSF leak. Our next symposium is October 2, 2021, and will be a...
Patient Advisory Panel for Research: Patient and Physician Perspectives
Spinal CSF Leak Foundation is launching our Patient Advisory Panel for Research because we believe that inclusion of the patient voice is crucial in moving research forward. As all of our board members, volunteers, and executive director are currently or have been...