The following is a transcript of a Q&A session at Spinal CSF Leak: Bridging the Gap 2024. Please note that the transcript been edited for length and clarity to center on the participant questions, whether put forward via online or in-person submission. Question: I...
Conference Video
Patient talk: How to minimize miscommunications when advocating for your care — Aubrey Bolan
https://youtu.be/rfrApO4ncw8 Slides Download the Slides Transcript I am very fortunate to be here today speaking as a patient who has recovered from spontaneous intracranial hypotension on two separate occasions. I feel especially lucky, considering how unusual my...
Physician talk: Communicating with patients during their spinal CSF leak journey — Dr. Mark Mamlouk
https://youtu.be/rJyIMsSg2H0 Slides Download the Slides Transcript Great, thank you for that kind introduction. I'd also like to thank the Foundation and Dr. Callen for the invitation to speak. So, over the next 15 minutes, we're going to be going on a spinal CSF leak...
Patient talk: Logistics of care and aftercare — Jen MacKenzie
https://youtu.be/YB02yznChRI Slides Download the Slides Transcript Today I'll be discussing, again, the logistics of care and aftercare. It might seem like some basics, specifically just practical strategies that I found helpful managing a life affected by a spinal...
Patient talk: Intersectionality and navigating diagnosis — Asia Gibson
https://youtu.be/oT4Z9Vt8vlo Transcript Good afternoon, everyone. I'm deeply honored to be here today, upright and in person with you all. 2019 was a pretty significant month for a couple of reasons. One, I think, was pretty significant because it was the last summer...
Physician talk: Patching basics — Dr. Ian Carroll
https://youtu.be/DrhoPeuuoXw Slides Download the Slides Transcript Thank you all. It's good to be here with friends again. I'm going to talk about the basics of epidural patching, something all the experts in the room are very familiar with, and some of the patients...
Patient talk: The patching experience from the patient’s point-of-view — Kristen Friese
https://youtu.be/jnKp4EXLFHw Slides Download the Slides Transcript Thank you all so much for being here. It is an honor to be talking today. The patching process can be arduous and have a lot of ups and downs, and I am so excited to explain what that process was like...
Physician talk: Iatrogenic spinal CSF leaks: the known and unknown — Dr. Andrew Callen
https://youtu.be/ZHiZ9W1GRXA Slides Download the Slides Transcript Hello and welcome back. We have heard amazing things about spontaneous CSF leaks and seen some amazing images. And we're moving on now to something that's sort of near and dear to my heart - and that...
Patient talk: The evolution of patient advocacy in spinal CSF leak — Linda Pohuski
https://youtu.be/GRF2yExaBUc Transcript Good afternoon. I would like to thank Dr. Callen, the University of Colorado, and the Spinal CSF Leak Foundation for this wonderful conference and the opportunity to speak to you today. Awareness and advocacy have been a big...
Patient talk: Caregiving in the context of spinal CSF leak — Darren Jackson
https://youtu.be/UhTd4uW5_8c Transcript Today I'm going to talk to you about caregiving in the context of CSF leak, but I'm going to be brutally honest. This talk is going to be hard for me. It's likely to get emotional, but that's okay. We'll all suffer through this...
Honoring Connie Rim – Jodi Ettenberg
https://youtu.be/TkFt0gAyaWI Transcript Earlier this year, the spinal CSF leak community lost a bright light when Connie Rim passed away. Connie spent many hours raising awareness about spinal CSF leaks. Her Facebook page, called "My CSF Leak Story," was one of the...
Physician talk: Photon Counting CT: What, when, why, and how? — Dr. Ajay Madhavan
https://youtu.be/vBkce-RFNBc Slides Download the Slides Transcript Alright, yes, so I'm AJ. I'm from the Mayo Clinic in Rochester. So, I'm going to be talking about photon-counting CT myelography and how it can help us. I don't have any disclosures. I do want to thank...











