Fundraise

Awareness and Fundraising Event Ideas

Medical Office Awareness

Awareness of spinal CSF leak remains low among health professionals and the general public. As a result, many patients are misdiagnosed, which can add months or even years to their suffering. You can help raise awareness among staff and patients at the offices of healthcare providers you already visit by providing information about spinal CSF leak and the Foundation. It is simple and easy. Just print our series of resource documents and bring them with you on your next visit.

Coffee / Tea Party

Many people with spinal CSF leak experience temporary relief by consuming caffeinated beverages. If you are not well enough to host a party, consider asking a friend to host one for you. Invite your friends and contacts. Tell them your story and distribute informational brochures. Think about using a purple theme. Ask your guests to wear purple and serve treats with purple icing. Ask them to post selfies and share information about spinal CSF leak on social media. Consider asking them to make donations to the Spinal CSF Leak Foundation to fund more education and research.

Stay at Home Tea / Coffee Campaign

Use postal mail to send one of your favorite instant coffee packets or tea bags to family and friends. Include your story and explain why you are raising awareness and fundraising for the Spinal CSF Leak Foundation. Suggest your contacts enjoy a cup of tea or coffee at their own convenience, read your story, and consider making a donation to the Foundation.

5K Walk, Bike, or Run or Charity Sports Event

With the popularity of weekend walk/run events, it would be great to get a group of friends to sponsor you or a family member for a spinal CSF leak team at a running event. As a patient, you may not be able to participate, but you can definitely get the word out. Collect donations and ask your friends and family to wear purple shirts. Include our brochure and other info as part of the run package for every participant to raise awareness.

Talent Show

Host a Talent Show in honor of the Spinal CSF Leak Foundation. Advertise on social media and let people know that any fees and donations will go to the Spinal CSF Leak Foundation.

Dine For Dollars

Approach a local restaurant or coffee shop and ask if they would be willing to donate a portion of the proceeds during the event period to the Foundation. Set up a spinal CSF leak information booth and ask your friends and contacts to attend.

Cocktail Party

Host a purple themed cocktail party. Ask your guests to wear purple. Serve purple cocktails. Take lots of pictures and post on social media. Explain how debilitating a spinal CSF leak can be and ask guests to spread awareness about the condition. Explain how donations are needed to help raise awareness, advance research, and improve testing and treatments.

Bake Sale

Ask friends and family to provide baked goods for a bake sale to promote awareness of spinal CSF leak and to raise funds for the Spinal CSF Leak Foundation. Find a location at a community event, local store, or in conjunction with another event. Once you get permission for the event, be sure to publicize through print and social media and ask folks to donate baked goods. Explain how donations are needed to advance research and to help educate the medical community as well as the community at large.