Raise Awareness
Why is it important to raise awareness about spinal CSF leak?
Because spinal CSF leak is so under-recognized by physicians and by the general public, grassroots efforts to raise awareness can be incredibly helpful. When people share information about spinal CSF leak, it increases knowledge of the condition, creates connection, and raises awareness. And with more awareness, spinal CSF leak can be recognized more readily and consistently; the people who suffer from it can be diagnosed more quickly and treated more effectively; and research funding becomes less challenging to secure. All of this is crucial to improving outcomes for people living with spinal CSF leak.
How can I help raise awareness about spinal CSF leak?
There are several things you can do to raise awareness. You can:
Talk about it!
- Talk about spinal CSF leaks and how you or someone you know is/was affected
- Post on social media using the hashtags #spinalCSFleak and #becauseyourduramaters
Share
- Share our website to help others find our information
- Share our news content, videos, patient stories, downloadable documents, and our social media content from Facebook, Instagram, YouTube, and Twitter
- Share your story—whether through sharing about your experience on social media, contacting your local news or television station to tell your story, or sharing it with us as a patient storyteller.
- If you’re interested in being featured as a patient storyteller, please contact us.
Shop
- Our Spreadshirt Shop features awareness items (including shirts, mugs, buttons, totes, and more) that can be helpful to kickstart conversations about spinal CSF leak.
- When you shop online with Giving Assistant and/or Goodshop, a small percentage of your purchase is donated to us.
