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Bob Paddock has been very active in raising awareness; publishing his wife’s story after her death by suicide. In his words:

“For nearly 25 years, I watched Karen struggle with nearly constant head pain to be relieved only by laying down, a loss of friends and a family that did not believe her. I was at times frustrated by lack of support from the medical community.
After many years of her own research, Karen suspected her diagnosis to be a spinal CSF leak so she sought treatment from the best physicians in the field. In the end, Karen took her own life when the treatments did not stop her pain; it is my belief that fluoroquinolone antibiotics and steroid use complicated her treatments.
Sometimes we choose our mission in life, other times it chooses us. To raise awareness and to attract research dollars, I initially collected her writings into a web site and then into a book. We must lose no one else to suicide due to this condition. I had hoped Karen would be the last, sadly, this is not the case.”
A reporter at the local paper summarized Karen’s story as:
“Karen’s first-hand account of her illness gave an honest, heart-wrenching depiction of what it is like to live with debilitating pain day-to-day.”

You can purchase the book here. This edition of the book was created by Bob for the Foundation who will receive the royalties from the sales.
Karen’s Journal on createspace
You can find the Kindle version here:
Karens Journal – Kindle version
The book is also available on Amazon:
Karen’s Journal on Amazon