We’re proud to announce that the Spinal CSF Leak Foundation’s international patient registry will be launching this fall! Growing a registry takes patience, with many steps from initial conception to implementation. And once it’s ready to launch, it...
“Perspectives from the Inaugural Bridging the Gap Conference: A Convergence of Clinical and Patient Expertise” We are THRILLED to announce that our paper on “Perspectives from the Inaugural Bridging the Gap Conference: A Convergence of...
People who live with spinal cerebrospinal fluid (CSF) leak find many ways to cope with this debilitating neurological disorder. For some, creating art is one way to help lighten the emotional load and process some of the experience. What is a spinal CSF leak? A...
Jodi Ettenberg spoke eloquently about living with a persistent leak in this talk given at the Bridging the Gap Conference on November 11, 2023. The conference was presented by the Spinal CSF Leak Foundation in partnership with the University of Colorado Anschutz...
A talk by Jen MacKenzie on the process of recovery after treatment at the Bridging the Gap Conference on November 11, 2023, presented by the Spinal CSF Leak Foundation in partnership with the University of Colorado Anschutz Medical Campus. Jen MacKenzie...
A talk by family medicine physician and spinal CSF leak patient Dr. Claudia Perez Sandhu on her experience having surgery to treat her spinal CSF leak. This talk was given at the Bridging the Gap Conference on November 11, 2023, presented by the Spinal CSF Leak...
