Head pain due to spinal CSF leak For many people experiencing spinal cerebrospinal fluid (CSF) leak, the most prominent symptom is head pain that worsens when upright and improves when lying down. But some patients never experience this kind of orthostatic...
Anna’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak is often confused with other diagnoses. Like so many patients, Anna was told her symptoms were due to sinus infection or migraine. Here is her story. A gradual beginning How old were you when...
John’s spinal CSF leak story Spinal cerebrospinal fluid (CSF) leak can affect anyone at any age. John was 71 years old when he experienced his first symptoms. Here is his story. A troubling symptom emerges How old were you when your spinal CSF leak symptoms...
September is pain awareness month For most people experiencing spinal cerebrospinal fluid (CSF) leak, pain is one of the most prominent, unrelenting symptoms, and treating it and living with it can be extremely challenging. According to the US Pain Foundation, 50...
All week this week, leading up to Mother’s Day, we have been sharing stories from mothers in our community about what it’s like to mother while leaking. Their experiences of grappling with uncertainty, grief, and resiliency as they navigate illness and...
Living with a spinal CSF leak is difficult. And when you’re a caretaker of others, it can be even more of a challenge. Add to that the cultural expectations that exist around motherhood, and many mothers living with leaks find themselves stretched as thin as dura...
