Clinician Education Initiative One of the many exciting projects launched this year by the Spinal CSF Leak Foundation is our new Clinician Education Initiative. We invited applicants to “dream big” and help increase the number of clinicians who are trained to...
RAREis Global Advocate Grant We’re excited to share that we’ve been selected as a 2023 #RAREis Global Advocate Grant awardee by Horizon Therapeutics’ “RAREis” program. This award recognizes our contributions to advancing, educating, and...
Headache on the Hill is an event held annually by the Alliance for Headache Disorders Advocacy in Washington, D.C. Each year at Headache on the Hill, volunteer advocates come together to personally present Congress with requests, or “asks,” which aim to...
The Spinal CSF Leak Foundation’s mission is to reduce the suffering of those affected by spinal CSF leak. To that end, we are passionately committed to furthering access to care for all patients.We are currently researching Medicare’s coverage of epidural blood...
Headache on the Hill 2022, which took place February 15, is an annual advocacy event in Washington DC organized by the Alliance for Headache Disorders Advocacy (AHDA), whose mission is to advocate for equitable policies for people with headache diseases—including...
