Links

Our friends in the UK are working to raise awareness about CSF leaks
CSF Leak Association
csfleak.info

National Headache Foundation
headaches.org

American Headache Society
americanheadachesociety.org

International Headache Society
ihs-headache.org

Global Genes
globalgenes.org

National Organization of Rare Disorders
rarediseases.org

A Tarlov cyst is a cerebrospinal fluid-filled nerve root cyst found most commonly at the sacral level of the spine. A ruptured cyst may be the site of a spinal CSF leak.
Tarlov Cyst Disease Foundation
tarlovcystfoundation.org

Spinal CSF leak can result in pseudo-Chiari and Syringomyelia
Chiari & Syringomyelia Foundation
csfinfo.org

Marfan Syndrome is one of the underlying heritable disorders of connective tissue associated with spontaneous spinal CSF leaks.
Marfan Foundation
marfan.org

Ehlers-Danlos Syndrome is one of the underlying heritable disorders of connective tissue associated with spontaneous spinal CSF leaks.
Ehlers-Danlos Society
ehlers-danlos.com

Polycystic Kidney Disease is associated with spontaneous spinal CSF leaks.
Polycystic Kidney Disease Foundation
pkdcure.org

Thoracic aortic aneurysms are associated with spontaneous spinal CSF leaks.
John Ritter Foundation
johnritterfoundation.org

Following procedures to treat spinal CSF leaks, rebound intracranial hypertension may occur.
Intracranial Hypertension Research Foundation
ihrfoundation.org/