Our friends in the UK are working to raise awareness about CSF leaks
CSF Leak Association
National Headache Foundation
American Headache Society
International Headache Society
National Organization of Rare Disorders
A Tarlov cyst is a cerebrospinal fluid-filled nerve root cyst found most commonly at the sacral level of the spine. A ruptured cyst may be the site of a spinal CSF leak.
Tarlov Cyst Disease Foundation
Spinal CSF leak can result in pseudo-Chiari and Syringomyelia
Chiari & Syringomyelia Foundation
Marfan Syndrome is one of the underlying heritable disorders of connective tissue associated with spontaneous spinal CSF leaks.
Ehlers-Danlos Syndrome is one of the underlying heritable disorders of connective tissue associated with spontaneous spinal CSF leaks.
Polycystic Kidney Disease is associated with spontaneous spinal CSF leaks.
Polycystic Kidney Disease Foundation
Thoracic aortic aneurysms are associated with spontaneous spinal CSF leaks.
John Ritter Foundation
Following procedures to treat spinal CSF leaks, rebound intracranial hypertension may occur.
Intracranial Hypertension Research Foundation